The ethics of sequencing newborns : reflections and recommendations / edited by Josephine Johnston, Erik Parens, and Barbara A. Koenig.
Contributor(s): Johnston, Josephine [editor.]
| Parens, Erik [editor.] | Koenig, Barbara A [editor.] | Hastings Center [issuing body.]
Material type: 
TextSeries: Hastings Center special report: Publisher: [Hoboken, New Jersey] : John Wiley and Sons, [2018]Description: 51 pages ; 28 cmContent type: text Media type: unmediated Carrier type: volumeUniform titles: Hastings Center report. Subject(s): Human gene mapping -- Moral and ethical aspects | Newborn infants -- Medical care -- Moral and ethical aspectsBibliography, Etc. Note: Includes bibliographical references.| Item type | Current library | Shelving location | Call number | Copy number | Status | Date due | Barcode | |
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John Bulow Campbell Library | 1 West | QH438.7 .E845 2018 (Browse shelf(Opens below)) | 1 | Available | 0182903523054 |
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| QH438.7 .D43 2003 Re-ordering nature : theology, society and the new genetics / | QH438.7 .D435 2006 Genetics and Christian ethics / | QH438.7 .E84 1998 The ethics of genetic engineering / | QH438.7 .E845 2018 The ethics of sequencing newborns : reflections and recommendations / | QH438.7 .G43 1997 Genetic ethics : Do the ends justify the genes? / | QH438.7 .G445 2004 Genetics and ethics : an interdisciplinary study / | QH438.7 .G465 2005 Genetics : science, ethics, and public policy : a reader / |
Cover title.
"This special report from the Hastings Center report is guest edited by Josephine Johnston, Erik Parens, and Barbara A. Koenig, with assistance from the editorial staff of the report"--Page 1.
Includes bibliographical references.
Sequencing newborns : a call for nuanced use of genomic technologies / Josephine Johnston, John D. Lantos, Aaron Goldenberg, Flavia Chen, Erik Parens, Barbara A. Koenig, and members of the NSIGHT Ethics and Policy Advisory Board -- Lessons for sequencing from the addition of severe combined immunodeficiency to newborn screening panels / Jennifer M. Puck -- Eugenics redux : "reproductive benefit" as a rationale for newborn screening / Diane B. Paul -- Are parents really obligated to learn as much as possible about their children's genomes? / Josephine Johnston and Eric Juengst -- What genomic sequencing can offer universal newborn screening programs / Cynthia M. Powell -- Whose odyssey is it? : family-centered care in the genome era / Jeffrey P. Brosco -- A new era, new strategies : education and communication strategies to manage greater access to genomic information / Megan A. Lewis, Natasha Bonhomme, and Cinnamon S. Bloss -- Families' experiences with newborn screening : a critical source of evidence / Rachel Grob, Scott Roberts, and Stefan Timmermans -- My diagnostic odyssey : a call to expand access to genomic testing for the next generation / Jeremy Michelson -- Single gene sequencing in newborn screening : success, challenge, hope / Robert J. Currier -- The legal dimensions of genomic sequencing in newborn screening / Rachel L. Zacharias, Monica E. Smith, and Jaime S. King -- Commercial interests, the technological imperative, and advocates : three forces driving genomic sequencing in newborns / Stacey Pereira and Ellen Wright Clayton -- Using newborn sequencing to advance understanding of the natural history of disease / Ingrid A. Holm.